1st Annual Advocacy for Cancer Patients Seminar

Posted in Advocacy Events

 
"Gathering His Slack" By Gary Morton

October 11, 2011
The Inaugural Advocacy for Cancer Patients Seminar

Pecos River Village Conference Center
Carlsbad, New Mexico

Closing the Loop on Cancer


Vital Medical & Legal Issues Addressed

  • What is the state of the art radiation techniques available in the Pecos Valley?
  • Do you know the latest issues concerning early diagnosis and treatment of cancer?
  • What types of counseling and social services are available to terminal patients and their families?
  • New Mexico Insurance code and regulations: How do I get medical bills paid by insurance companies that should be paid?
  • What are the latest developments in diagnosis and treatment of breast cancer? What is available in southeastern New Mexico?
  • So your employer wants to fire you because you have continuing treatment. Now what?
  • Is there a future for Medicaid?
  • How do we build a strong community network with links to new cancer prevention, early diagnosis, and treatment?

Patty Jennings : A Legacy of Hope

Patty Jennings - A Legacy of HopeOn Valentine’s Day, 2009, the state of New Mexico and the UNM Cancer Center lost a longtime friend and patient advocate. Patty Jennings, wife of state Senate President Pro Tem Tim Jennings, passed away after a long, hard fight with breast cancer. Patty was best known for her selfless hours of work for children with special needs and for ensuring that every New Mexican had access to health insurance and medical care.

Patty took on the additional role of advocating for breast cancer research after her own initial diagnosis of Inflammatory Breast Cancer (IBC) on Christmas Eve, 2004. IBC is a rare but deadly form of breast cancer, making up less than five percent of all breast cancer cases. IBC is characterized by the thickening of breast tissue, redness and burning, but not the identifiable lump associated with most other breast cancers.

Patty learned later that she had been misdiagnosed; instead of IBC, she had another type of high-risk breast cancer. But her ordeal strengthened her resolve to help the women whose lives are taken by IBC every year. During the 2007 state legislative session, she and Senator Jennings worked with lawmakers to unanimously pass a $3.2 million allocation for a joint IBC research project between the UNM Cancer Center and the M.D. Anderson Cancer Center. Texas legislators followed suit with $4 million in matching funds.

“The UNM Cancer Center and, really, all people of New Mexico, are forever indebted to Patty Jennings,” said Dr. Cheryl Willman, director and CEO of the UNM Cancer Center. “She paved the way for incredible research advances against this complex cancer. Thanks to her devotion, the UNM Cancer Center is one of the few places in the nation conducting ground-breaking research on this terrible disease. We are so grateful for her immeasurable contribution to our work, for helping to facilitate our partnership with M.D. Anderson, and for being such a wonderful advocate for cancer patients. We have suffered a tremendous loss, and she will be truly missed.”

Patty’s vision remains a guiding light at the UNM Cancer Center in the work of her friend Dr. Melanie Royce. A breast cancer oncologist at the UNM Cancer Center and a Professor of Internal Medicine at the UNM School of Medicine, Dr. Royce has been recognized by the National Cancer Institute for her leadership in the field of clinical breast cancer research. Soon after Patty passed away, Royce was selected as one of only 11 physicians across the nation to receive the first of the prestigious NCI Clinical Investigator Team Leadership Awards, which were launched that same year. The goal of this award is to support and recognize exceptional clinical investigators whose work fosters successful clinical research programs at NCI Cancer Centers. Patty would be pleased.


 

Closing the Loop on Cancer

  • Objective
  • Agenda
  • Speakers
  • Planning Committee

OBJECTIVE:

  • What is the state of the art in radiation techniques available in the Pecos Valley?
  • Do you know the latest issues concerning early diagnosis and treatment of cancer?
  • What types of counseling and social services are available to terminal patients and their families?
  • New Mexico Insurance Code and Regulations: How do I get medical bills paid by insurance companies that should be paid?
  • What are the latest developments in diagnosis and treatment of breast cancer? What is available in southeastern New Mexico?
  • So your employer wants to fire you because you have continuing treatment. Now what?
  • Is there a future for Medicaid?
  • How do we build a strong community network with links to new cancer prevention, early diagnosis, and treatment?

TIME

  • 7:00-7:45 a.m.
  • 7:45-8:00 a.m.
  • Moderator
  • 8:00-8:45 a.m.
  • 8:45-9:45 a.m.

  • 9:45-11:00 a.m.


  • 11:00-11:45 a.m.
  • 11:45-1:15 p.m.
  • 1:15-2:15 p.m.


  • 2:15-3:05 p.m.

  • 3:05-3:20 p.m.
  • 3:20-4:15 p.m.

  • 4:15-4:45 p.m.

  • 4:45-5:00 p.m.

SPEAKER / TOPIC

  • Breakfast
  • Welcome & Introductions
  • Cheryl L. Willman, M.D.
  • Carlos Hadzic, M.D. IMRT as a least destructive radiation therapy and the state of the art in radiation techniques available in the Pecos Valley.
  • Alvaro Alencar, M.D. Methodologies for identification of melanoma and other skin cancers and breast cancer.
    The latest issues concerning early diagnosis and treatment and discussion with patients and families.
  • Melanie Royce, M.D. Latest developments in diagnosis and treatment of inflammatory breast cancer and
    other breast cancers. Discussion of clinical trials programs and New Mexico Cancer Care Alliance and engagement of Southeast
    New Mexico in access to clinical trials and local care.
  • Questions & Answers Session
  • Lunch hosted by Jeff and Evy Diamond on behalf of The Shannon J. Shaw Memorial Cancer Fund
  • Greta Fischer, Esq. & Cynthia Hall, Esq. The Social Security Compassionate Allowance Program with 100 diseases which will
    allow patients to be approved for benefits as fast as 6-8 days, the medical evidentiary requirements.
    The State Insurance Department helping patients and providers get insurance companies to pay bills for medical expenses.
  • Will Parsons, Ph.D. Meaningful discussion with patients and families regarding terminal disease, identifying psychological pathologies,
    and referrals for counseling, social service intervention, and psychological services.
  • Break
  • Monte Shaheen, M.D. Melanoma clinical trials, effectuating NMCCA goals, clinical opportunities in small communities to identify
    and treat skin cancer when there is no dermatologist in residence.
  • Rod Schumacher, Esq & Masoud Khorsand-Sahbaie, M.D.Building a strong community network and linkages to state
    of the art cancer prevention, early diagnosis, and the treatment options available in the state of New Mexico.
  • Questions & Answers Session

Cheryl Willman, M.D.

Director and CEO, University of New Mexico Cancer Center, Albuquerque, NM


Melanie Royce, M.D., Ph.D.

Medical Oncologist Professor, Department of Internal Medicine, Division of Hematology/Oncology Director, Multidisciplinary Breast Cancer Program Director, Hereditary Cancer Assessment Programv Specialist in Breast Cancer, University of New Mexico Cancer Center, Albuquerque, NM


Monte Shaheen, M.D.

Medical Oncologist Assistant Professor, Department of Internal Medicine, Division of Hematology/Oncology Specialist in Immunology and Microbiology, University of New Mexico Cancer Center,Albuquerque, NM


Carlos Hadzic, M.D.

Radiation Oncologist Carlsbad Advanced Radiation Oncology Center


Will Parsons, Ph.D.

Private Practice, Roswell, NM


Alvaro J. Alencar, M.D.


Masoud Khorsand-Sahbaie, M.D.,FACP

Kymera Independent Physicians


Greta B. Fischer, Esq.

The Jeff Diamond Law Firm, Odessa, TX


Rod Schumacher, Esq.

CEO, Roswell Regional Hospital

Cheryl William, M.D.

Director and CEO 
Professor, Departments of Pathology and Medicine
The Maurice and Maguerite Liberman Distinguished Chair in Cancer Research
Specialist in Leukemia, Lymphoma and Myeloma


Anita P. Miller Esq

Member Healthlaw Section Breast Cancer 
Task force Chairman, American Bar Association, Albuquerque, NM


Rae Ann Paden, MPH

Chief of Research Administration and Marketing, UNM Cancer Center


Kenneth Thompson, MS, CFRE

Director of Development, UNM Cancer Center


Jeffrey B. Diamond, Esq

National Board of Legal Specialization 
Social Security Advocacy, Carlsbad, NM